Two heart operations in her first 8 months of life

By Diane Daniel, American Heart Association News

4岁的先天性心脏缺陷幸存者莫莉·蒂茨沃斯(右)和她的哥哥麦考伊. (Photo by R. Dodson Photography)
4岁的先天性心脏缺陷幸存者莫莉·蒂茨沃斯(右)和她的哥哥麦考伊. (Photo by R. Dodson Photography)

When 4-year-old McCoy Tittsworth met his sister, Molly, hours after she was born, he held her swaddled body and kissed her on the cheek. She was the little sister he'd prayed to have.

A day later, while waiting to be discharged from the hospital in Wichita, Kansas, her oxygen levels started to slowly drop. She developed a barely perceptible whistle when breathing.

一名护士告诉莫莉的父母詹妮尔和瑞安,她要带新生儿做更多的检查. 不久,一位心脏病专家告诉他们,莫莉生来就有先天性心脏缺陷. 她心脏里的血液通道没有形成,无法完成它的工作. 这叫做主动脉弓中断,需要在另一家医院进行专门治疗.

莫莉被空运到三小时车程外的堪萨斯城医院.

McCoy had been expecting to welcome his sister home that day. 取而代之的是,詹妮尔跪下来面对他的眼睛说:“你的小妹妹和医生在一起."

She and Ryan then took McCoy to preschool, 他们不知道多久才能再见到他们的儿子,也不知道他们能否带着他的妹妹回来.

As soon as they left him, Janelle collapsed into tears.

在新医院里,大约有30个人治疗莫利——部分原因是他们发现了更多的问题.

Molly also had a hole in her heart. 她有主动脉狭窄,限制了心脏的血液流动. Because of her age, doctors performed a temporary fix. When she was a week old, they placed a stent in her heart.

Molly stayed in the pediatric ICU until she was 4 weeks old. 当她回到家时,麦考伊吻了她,并抱了她好几分钟. 贾内尔高兴地哭了起来,因为她看到了一个她担心可能不会发生的时刻.

麦考伊·蒂茨沃斯抱着他的小妹妹莫莉,那天她从医院回家. (Photo courtesy of the Tittsworth family)
麦考伊·蒂茨沃斯抱着他的小妹妹莫莉,那天她从医院回家. (Photo courtesy of the Tittsworth family)

莫莉能够回家,是因为医院使用了一款用于监控的智能手机应用.

"We monitored her every detail and had to record every bottle, diaper, weight, oxygen levels, color, etc., as well as taking videos," Janelle said.

到莫莉8个月大的时候,她已经准备好接受永久性治疗了.

外科医生重建并修补了她的主动脉弓,然后修复了她心脏上的洞. She was in the hospital for five weeks.

“医生说这是他做过的最危险的手术之一,”詹妮尔说. "That just made my heart drop."

Ryan Tittsworth with Molly just after her open-heart surgery. (Photo courtesy of the Tittsworth family)
Ryan Tittsworth with Molly just after her open-heart surgery. (Photo courtesy of the Tittsworth family)

现在已经四岁了,莫莉还需要至少两次开胸手术才能完成生长.

"People ask me if the next surgery will be easier," Ryan said. "Maybe it will be medically, 但从情感上来说,这只会让我们所有人都更难接受,因为她现在可以说话了,而且更像她自己了."

Life during the COVID-19 pandemic has been more challenging, especially when McCoy, now 9, contracted the virus after he returned to school this fall.

"We're over the top careful with Molly," Janelle said. "Even strep and the flu is a concern. But we can either put her in a bubble or let her live. We do our best."

Meanwhile, McCoy is enjoying his little sister.

"It's so fun to watch them," Janelle said. 他们仍然像兄弟姐妹一样争吵,但他会照顾她,照顾她. He truly is her biggest fan."

这个家庭参加了今年在威奇托举行的沙巴足球体育平台心脏行走, and their team was the top fundraiser.

"This whole thing has consumed our lives for so long, and now we're ready to give back," Janelle said. “我们有来自朋友、家人和同事的巨大支持. 在莫莉的旅途中,他们非常慷慨和支持."

这对夫妇也依靠他们的信仰来获得支持,并为莫莉收到的许多祈祷而感到幸福.

蒂茨沃斯一家,从左顺时针方向依次是莫莉,瑞恩,詹妮尔和麦考伊. (Photo by Danielle Haydon Photography)
蒂茨沃斯一家,从左顺时针方向依次是莫莉,瑞恩,詹妮尔和麦考伊. (Photo by Danielle Haydon Photography)

For now, 莫莉没有意识到任何限制,也没有意识到她手术留下的伤疤.

"If you saw her, you'd never know anything was wrong on the inside, until you see her scar," Ryan said. "She tries to keep up with McCoy, but can't always. We want her to decide how far to push herself. The only person that can put limitations on Molly is Molly."

Stories From the Heart 编年史鼓舞人心的旅程心脏病和中风的幸存者,照顾者和倡导者.

如果你对这个故事有任何问题或意见,请发邮件给我 editor@baokaob363.com.


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